Posted by 6 more days…
And just in time I have gotten some great news from Emory–they have the link set up to give! Just to let you know a bit more about what you are giving to I also have a summary of the literature review.
Historically the treatment of Giant Cell Tumors has been what they call advanced cutterage, which basically means they take out the tumor and then a little bit more and then they use tools to burrow out more area. Then they pack the area that has been hollowed out with bone cement, bone graft or a combination of both. This study is going to investigate whether adding a medicine that has been used to treat osteoporosis in the bone cavity during surgery would decrease the reoccurrence rate of the tumor. A study like this is very good news to me as the reoccurrence rate is somewhere between 15 and 30 percent depending on what site you consult and the exact procedure you had done to remove the tumor and therefore it’s always in the consciousness of someone with a giant cell tumor. In fact, it always comes up early in a conversation with another giant cell tumor patient…how long ago was your surgery? when is your next year anniversary? as the longer after surgery without a reoccurrence, the less likely it is to happen.
With your help, we can begin to find ways to shrink the reoccurrence rate…got to tell you that is music to my ears and the ultimate way to give it to the tumor!
So if you are willing to join me, and the 27 others who have already pledged (shout out and thank you to you all!!!), in this fight, here is how to give…
You can give online via credit card at the following link:
Or
You can send also check to
Emory Orthopaedics & Spine Center
ATTN: Susan House
59 Executive Park South
Atlanta, GA 30329
Please reference #takethattumor in the memo line.
Susan works in Development at Emory University School of Medicine and can be reached at 404-778-4258 if you have any questions or would like more information.
With 6 more days in the final countdown people have been asking how I feel…overwhelmed, scared, excited, emotional, tired, hungry, and good is a smidge of what I felt today…similar emotions to what I was having 51 weeks ago as I was meeting Dr. Monson for the first time and subsequently preparing for surgery. So crazy to think the difference a year makes!
call me koko 
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